We are hoping for a cure in 2017!

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Our matching bracelets from Keep Collection are my favorite. It is our daily reminder to never give up hope on a cure.

We survived the holiday season. I didn’t bake any traditional Christmas delights or any Christmas meals. We focused on spending time together as a family and remaining positive. We are coming up on a year of L’s initial food impaction that led us to her diagnosis of eosinophilic esophagitis.

I wasn’t quite sure how we would make it through the first year, but we did it with God’s strength, prayers, and encouragement from friends in the EoE community. Going into this health journey, my mind was swirling with so many questions. Now, I am able to help other families. We obviously do not have all the answers as L has yet to confirm her first safe food. She has her fifth scope this Thursday to determine if we can for sure say pears is a safe food. Going into this scope, I’m remaining positive that she is going to have a clean scope. L has not had any major reactions or symptoms, so we are believing this is going to be a good news scope.

Food trials are hard. You get into a safe zone of no symptoms and want to just stay there because of fear of adding new foods and the symptoms return. Our goal is to try and add more foods this year. L has tried a couple foods but didn’t really make it past day 5 or 6, so her allergist confirmed we should just stick with one food trial at a time instead of trying to double up on foods. The sad news is a endoscopy has to be used each time to confirm or deny a safe food. Hopefully with research this year, there will be an easier way to check on the esophagus. Each time L has an endoscopy, she has to be put to asleep so you can imagine her anxiety about scope days.

We will let you know how the scope goes on January 12 and figure out which food we will trial next. L has almost lived on a prescription formula to keep her alive for a year. My  husband mentioned to me tonight, he doesn’t know how she continues to drink the formula (usually 7 to 8 boxes a day). The formula does not have a great smell, but with her endurance and strength, she drinks to boxes.

I continue to say she is a such a strong and brave child!

l

2017 Toyota Sienna Review

We are on the road several times a month to Children’s Hospital for L’s doctor appointments. There are many times that we have to leave early in the morning in order to be there on time for our 8:00am appointment. We were delighted to test drive the 2017 Toyota Sienna on one of our recent clinic days. Check out which feature was M and L’s favorite!

#DisneyParksLIVE Will Broadcast Magic Kingdom Park Fireworks on December 31

We started a tradition last year and hope to keep it a tradition for many years to come.

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If we can’t be at Disney World on New Year’s Eve, the next best thing is watching the fireworks via live stream on the Disney Parks Blog. #DisneyParksLIVE team will bring you a live stream of “Fantasy in the Sky” fireworks live from Magic Kingdom Park on 12/31 at 11:45 p.m.

The live stream will begin at 11:45 p.m. EST in a fresh blog post that will appear at the top of the blog. You can also follow along on Twitter with the hashtag #DisneyParksLIVE.

However you decide to celebrate, we wish you a safe and Happy New Year’s Eve. We are looking forward to a great, magical, and mighty 2017!

Vlogmas: Starting a new tradition without food! #EosinophilicEsophagitis

Disney Limited Time Offer: Get a 4-Park Magic Ticket for Only $70 Per Day

We heart Disney and try to find as many frugal ways to book a Disney family vacation. Disney has just released an amazing deal to help your family book an affordable and magical vacation.

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Experience special magic in all 4 Walt Disney World theme parks on 4 separate days with the 4-Park Magic Ticket for only $279 per adult and $259 per child, plus tax.

The 4-Park Magic Ticket grants you one day of admission to Magic Kingdom park, one day of admission to Epcot, one day of admission to Disney’s Animal Kingdom theme park and one day of admission to Disney’s Hollywood Studios on 4 separate days, so you can enjoy must-do experiences in all 4 Walt Disney World theme parks. Ticket may not be used to enter the same park more than once.

Purchase from November 15, 2016 through March 5, 2017. Tickets are not valid for admission on any of the following blockout dates: December 17, 2016 through January 2, 2017 and April 10 through April 21, 2017.

You can book directly on the website.

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