Bringing back the 80s….. {Must watch}

My Madi girl performed in her end of the year clogging recital this past weekend. I’m so incredibly proud of her talents. She received an award for 9 years of clogging.

Have you heard of clogging? Check out one of her dances from the recital.

Her strength amazes me – #eosinophilicesophagitis

I would be lying if I said that seeing pictures of families having cookouts and roasting marshmallows by the campfire did not make me sad. Friends, I started crying this weekend when I saw a family enjoying s’mores together. My heart just hurts for my L. There are moments that I am weak and this weekend was one of those moments. God gives us strength and I know he gives L strength to continue on her journey each day. Food is all around us and in our faces everywhere we go. As L’s mom, I try to make her comfortable while she is drinking her formula. At 12 years old, we get questions of why she is drinking formula or only eating pears and sweet potatoes. For people that do not know about her disease, their jaw drops every single time when I explain about the disease. The next phrase out of their mouths is “How does she do it?” L answers with the same answer, God gives her strength. Oh tears, friends.

We do not leave the house without her backpack and in that backpack, I ensure she has her formula, pears and sweet potatoes. Also, I include the elemental candy she can have which is 100% pure sugar. People have made comments of why we let her have so much sugar, but why wouldn’t we?

L with animalsL’s happy place right now is with animals. The stress and anxiety goes out the door when we see L smile ear to ear when she is surrounded by animals. This girl has a way with animals.

Recently, we were visiting my aunt’s farm and the donkeys just proceeded to come right up to L. It was a priceless scene. In that moment, we did not think about her eosinophilic esophagitis, all the medicines that she needs to take, or her sugar getting too low. It was a moment of our girl having fun and enjoying being a child. This is how life should be for her. My goal is to try and not let her rare disease take away her joy. God has big plans for our girl and we are going to be cheering her on every step of the way. L and I sat on the couch and cried together earlier this week because she said she was thankful God gave her this disease as it has made her stronger in her faith. She mentioned, if God only allows her to have two safe foods, she will be grateful for those two foods. This girl is simply amazing. Her strength will be a huge testament to others. If I’m having a bad day, I just think about L and her living her days with very little food options. Just look at her smile on her face? That is a face of perseverance and strength.

With all the pollen in our area, it has wrecked havoc on her little body. We are not able to do a food trial right now but hoping in the next few days, the pollen counts will drop and we can start another food trial. Failing a food trial is so hard on her as it brings all her symptoms back and takes a toll on her day-to-day activities. We will never stop praying for a cure.

L, you are my hero!

CARS 3 opens in theatres everywhere on June 16th!

We were able to surprise the boys on an amazing trip this past weekend. The CARS 3 Tour rolled into a town near us and we were all able to go and see a life-size replica of some of the cars in the upcoming movie.

CARS 3

Take a seat and watch a short promotional video of the new movie!

This movie will be more emotional than the other CARS movies. Blindsided by a new generation of blazing-fast racers, the legendary Lightning McQueen (voice of Owen Wilson) is suddenly pushed out of the sport he loves. To get back in the game, he will need the help of an eager young race technician, Cruz Ramirez (voice of Cristela Alonzo), with her own plan to win, plus inspiration from the late Fabulous Hudson Hornet and a few unexpected turns. Proving that #95 isn’t through yet will test the heart of a champion on Piston Cup Racing’s biggest stage! Directed by Brian Fee (storyboard artist “Cars,” “Cars 2”), produced by Kevin Reher (“A Bug’s Life,” “La Luna” short) and co-produced by Andrea Warren (“LAVA” short).

To help get your children excited for the movie release, we have a memory game you can download and print.

The boys enjoyed learning how to change a tire and seeing a sneak peek of the movie. There was no movement of them during the 15-minute sneak peek. They truly were in awe!

CARS 3 Tour
ligthningmcqueenDisney Pixar Movie CARS 3

Please note: Jackson is enjoying a delicious Pineapple Pit-Stop Smoothie by Dole in the video.

Here is the easy recipe:

INGREDIENTS

2 cups DOLE® Pineapple
1 cup DOLE Baby Spinach
1 DOLE Banana
1 cup unsweetened almond milk 1 cup ice
1⁄4 tsp ground cinnamon

DIRECTIONS

Combine pineapple, spinach, banana, almond milk, ice and cinnamon in blender. Cover; blend until smooth.

For the latest movie release updates, please visit the CARS 3 Facebook page and don’t forget about the June 16th release date. Enjoy!

We Need a Cure!

Mom and L

What if your child could only get their nutrition from a feeding tube or by drinking a prescription formula? This is a very thought-provoking question. You probably have never been asked this question before, but I’m asking you since this week is National Eosinophilic Awareness Week.

After years of going to several different doctors, L was finally diagnosed early last year with a rare disease called Eosinophilic EsophagitisAccording to the American Academy of Allergy Asthma & Immunology, Eosinophilic Esophagitis is a recognized chronic allergic/immune condition. A  person with EoE will have inflammation of the esophagus. The esophagus is the tube that sends food from the mouth to the stomach. EoE is considered to be a chronic condition and is not outgrown. That’s why why we need a cure for our L and the many others that suffer from this horrific disease.  Children often have recurring abdominal pain, trouble swallowing or vomiting. The esophagus can narrow to the point that food gets stuck. This is called food impaction and it is a medical emergency. We have been in the emergency room several times with L because of food impactions before we took food completely out of her diet and put her on a prescription formula.

L does food trials and currently only has two safe foods, pears and sweet potatoes. Can you imagine waking up in the morning and only being able to eat the two same foods and formula? Can you imagine going to a party and watching everyone at food around you? Can you imagine walking into a restaurant and seeing all these people eat around you but you know that you are not able to eat that food? Can you imagine kids all around eating candy, ice cream cones, and/or juice but you can’t? It’s hard to imagine life like this but it is our L’s reality. We need a cure.

The CURED Foundation is a not for profit foundation dedicated to those suffering from Eosinophilic Gastrointestinal Diseases (EGID), including eosinophilic esophagitis (EoE), eosinophilic gastritis (EG), eosinophilic colitis (EC) and other eosinophilic disorders. CURED is committed to raising substantial funding to aid in research, advocating on behalf of EGID patients and their families, and working to educate and increase awareness about this complex group of diseases. 100% of  every donation to the CURED Foundation goes straight to research. Will you help spread the word and/or donate so we can see a CURE in our near future. Our family is begging and pleading for you to take this serious.

Thank you for hearing us out. My L is the strongest person I have ever met. She truly is my hero!

CARS 3 “Road to the Races” Tour Rolls into Charlotte

Do you have any CARS fans in your house? We sure do in our house. The girls, Jacka, and Gray Baby all have a joint love for Disney World and CARS. Go ahead and gather all your CARS fans because you will not want to miss this FREE event at Charlotte Motor Speedway this week.

CARS 3, the newest film in the smash-hit franchise, is hitting the road this Spring with a “Road to the Races” tour in select cities across the country. Life-size, character look-alikes of five-time Piston-Cup champion Lightening McQueen (voice of Owen Wilson), tech-savvy Cruz Ramirez (voice of (voice of Cristela Alonzo), and the sleek next-gen racer Jackson Storm (voice of Armie Hammer) will be rolling into the Charlotte Motor Speedway to celebrate the new movie, which opens in theatres nationwide on June 16, 2017. With Charlotte’s rich history of racing, there is no better place to gear up for the release of CARS 3 than at the Charlotte Motor Speedway.

CARS 3 “Road to the Races” tour is free and open to the public! Fans will have the opportunity to:

– Take photos with the “stars” of the movie – Lightning McQueen, Cruz Ramirez and Jackson Strong

– Participate in a host of family-friendly activities

– Race pit crew tire-changing simulation

– Sample high-octane smoothies

– Interactive play area featuring locations from the movie

– Get a first look of the new movie in the Cinetransformer Mobile Movie Theater.

Activities:

Alamo Rent A Car is hosting a street art booth and will bring “Cars 3” to life with a giant coloring mural featuring Lightning McQueen and friends, along with a color pencil pack souvenir. Owned and operated by Enterprise Holdings, Alamo Rent A Car offers low rental rates and a hassle-free customer experience at the most popular travel destinations around the world.

Coppertone® is creating a racer pit crew that encourages visitors to take part in a tire-changing activity and photo-sharing opportunity. A leader in the sun care industry, Coppertone is made by Bayer HealthCare, LLC.

Crest® and Oral-B® celebrate the Road to the Races tour, providing fans with an opportunity to create a digital postcard with Lightning McQueen and get “Cars”-themed oral care products. Crest and Oral-B are the first step to enjoying a lifetime of healthy smiles.

Dole®, the leader in fresh, quality produce, invites visitors to fuel up and recharge their batteries, sample high-octane fruit and vegetable smoothies, collect “Cars 3”-inspired recipes and discover how Dole and Disney are working together to make healthy living fun and easy for families. To see more of Dole’s exciting promotions around summer family fun, visit www.dole.com/Cars3.

Mattel presents an interactive play area, which sends Lightning McQueen and other racers down the gravity drop and launches them into action in new play sets that feature locations from the movie. Also on display will be a collection of die cast racers from past and present. Mattel is the leading global childhood development and play company.

Again, fans will be able to catch a sneak peek of the movie in the Cinetransformer Mobile Movie Theater. Visitors will also be able to take photos with the life-size character cars. In addition, the sports national youth program NASCAR Acceleration Nation will display the science behind NASCAR racing, and elements from the NASCAR Hall of Fame will allow attendees to get up close and personal with the history of NASCAR.

Cars_3_Flyer_FINAL_Charlotte

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