Eosinophilic Esophagitis

Day #3 of National Eosinophilic Awareness Week!

The numbers are changing as eosinophilic diseases are on the rise. When L was first diagnosed, we did not know anyone with this disease. Our family actually had to practice how to say the name of the disease. Fast forward three and a half years, and we continue to hear more and more people getting diagnosed. The research needs to continue to see why the increase and a CURE!

Today, I wore my CURED shirt to work to raise awareness. It is my passion to talk about this disease to educate more and more people. We are very thankful to the family and friends that have donated in L’s honor to the CURED Foundation.

Day #2 of National Eosinophilic Awareness Week!

TheÂ CURED Foundation is a not for profit foundation dedicated to those suffering from Eosinophilic Disorders. They are the only group that donates 100% of profits to research for a cure. Isn’t that amazing?

Recently, CURED announced they surpassed the 5 million dollar mark to research. I have so much hope that a cure is just around the corner.

Day #1 of National Eosinophilic Awareness Week!

As many of you know, our L was diagnosed with eosinophilic esophagitis in early 2016. The last three and a half years have been so hard but to watch my girl strive with perseverance to fight for each day is remarkable. She still relies on an amino acid formula to keep her alive, but we are so proud to say that she finally has four safe foods. To go from zero safe foods to four safe foods is huge in our daughter’s world. Everything in today’s society seems to revolve around food. It is depressing for kids that cannot participate in food activities because of this evil disease.

Today kicks off National Eosinophilic Awareness Week. Each day this week, I will be sharing information from the CURED Foundation to raise awareness about L’s disease. We need a cure!

The Teal Pumpkin Is Our Favorite!

Halloween is just around the corner. Over the next two weeks, there will be many parties, trunk or treats, fall festivals, and the big trick or treating night. Food Allergy Research and EducationÂ raises awareness of food allergies and promoting inclusion of all trick-or-treaters throughout the Halloween season.

L has put together a video that shares more details about the Teal Pumpkin Project.

Check out the project website for more examples of non-food treats. We hope you will love the teal pumpkin as much as we do!

L receives the BEST birthday present!

Our blue-eyed girl is 14 today!

I was so honored to take a vacation day from work to see all the progress L has made with horse therapy (update coming soon). This extra time also allowed me to spend one-on-one time with L.

Hubby and I are so proud of the strength our girl displays on a daily basis. These last three years living with eosinophilic esophagitis have been a hard road for L to travel. Her faith remains strong and it is not unusual for us to find L reading her Bible and praying in her room at all different times of the day. Another huge blessing is her beautiful singing. She will record herself singing for the Lord. Her videos are spreading joy to many.

Happy Birthday, L! You are writing an amazing story and your testimony is going to help many in this world.

L received the best birthday present this year. She finally has a safe food again! Her scope a week and a half showed zero eosinophils. This means that L passed her garbanzo bean trial. Stay tuned for a flatbread recipe and food haul.

Since L can only have her Neocate formula and garbanzo beans, I had to put my thinking cap on what to do for her birthday cake. Our local Dollar General stocks candy corn cotton candy which is all artificial and safe for children on elemental diets. I used four containers and created a round “cake.”

Mom, Dad, and Madi love you to the moon and back, L!

Eosinophilic Esophagitis

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