We have exciting news!

Jen from One Moms World

This was truly the best weekend ever. We were surrounded in love with our family and enjoyed celebrating a big event. L and I will be releasing an update on our YouTube channel on Tuesday to tell you the big news. We hope you are subscribed to our channel so you will get the notification when the video goes live. God is so good and we are giving Him the glory for this great news!

Dog Therapy is the Best Medicine!

As you all know, my youngest daughter L has a rare disease. She amazes me with her strength. I’m going to be real and honest. I don’t know if I could live on a prescription formula. L shared how she deals with her chronic illness in her latest video. Hope you will take the time and watch.

Dogs are a great medicine for our sweet L. She is a huge animal lover and her heart beats very fast when she is around dogs. The love and compassion she has for dogs is amazing. Dog therapy is truly the best medicine for her. We had a big clinic day yesterday at Children’s Hospital and our friend met us at a nearby park with her dogs. This helped ease L’s anxiety and just seeing her smile ear to ear, warmed our hearts immensely.

Sissy and Teddy

In addition, on our recent trip to Florida, we stayed with family part of the trip and they have two boxers. L was over the moon during our entire stay. This picture will now be framed in her “dog” room.

Sissy and Turner

Dogs speak her language and help her cope. She can be having a bad day and our medicine is to immediately bring up dogs to her. She can sit for hours and tell you how to train a dog. Her future goal is to get a puppy, train the puppy, and have it be registered as a service dog so she can take the dog to Children’s hospitals. I feel she will accomplish this goal in the near future.

Enjoy her video and please continue praying for a cure!

We have great news…. #EosinophilicEsophagitis

Did you hear that? That was the entire family shouting with joy. Why are we shouting? You will need to watch our latest vlog as we share big news in L’s eosinophilic esophagitis journey!

We are hoping for a cure in 2017!

hope-for-a-cure-eoe

Our matching bracelets from Keep Collection are my favorite. It is our daily reminder to never give up hope on a cure.

We survived the holiday season. I didn’t bake any traditional Christmas delights or any Christmas meals. We focused on spending time together as a family and remaining positive. We are coming up on a year of L’s initial food impaction that led us to her diagnosis of eosinophilic esophagitis.

I wasn’t quite sure how we would make it through the first year, but we did it with God’s strength, prayers, and encouragement from friends in the EoE community. Going into this health journey, my mind was swirling with so many questions. Now, I am able to help other families. We obviously do not have all the answers as L has yet to confirm her first safe food. She has her fifth scope this Thursday to determine if we can for sure say pears is a safe food. Going into this scope, I’m remaining positive that she is going to have a clean scope. L has not had any major reactions or symptoms, so we are believing this is going to be a good news scope.

Food trials are hard. You get into a safe zone of no symptoms and want to just stay there because of fear of adding new foods and the symptoms return. Our goal is to try and add more foods this year. L has tried a couple foods but didn’t really make it past day 5 or 6, so her allergist confirmed we should just stick with one food trial at a time instead of trying to double up on foods. The sad news is a endoscopy has to be used each time to confirm or deny a safe food. Hopefully with research this year, there will be an easier way to check on the esophagus. Each time L has an endoscopy, she has to be put to asleep so you can imagine her anxiety about scope days.

We will let you know how the scope goes on January 12 and figure out which food we will trial next. L has almost lived on a prescription formula to keep her alive for a year. My  husband mentioned to me tonight, he doesn’t know how she continues to drink the formula (usually 7 to 8 boxes a day). The formula does not have a great smell, but with her endurance and strength, she drinks to boxes.

I continue to say she is a such a strong and brave child!

l

Vlogmas: Starting a new tradition without food! #EosinophilicEsophagitis

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