Did you hear that? That was the entire family shouting with joy. Why are we shouting? You will need to watch our latest vlog as we share big news in L’s eosinophilic esophagitis journey!
Our matching bracelets from Keep Collection are my favorite. It is our daily reminder to never give up hope on a cure.
We survived the holiday season. I didn’t bake any traditional Christmas delights or any Christmas meals. We focused on spending time together as a family and remaining positive. We are coming up on a year of L’s initial food impaction that led us to her diagnosis of eosinophilic esophagitis.
I wasn’t quite sure how we would make it through the first year, but we did it with God’s strength, prayers, and encouragement from friends in the EoE community. Going into this health journey, my mind was swirling with so many questions. Now, I am able to help other families. We obviously do not have all the answers as L has yet to confirm her first safe food. She has her fifth scope this Thursday to determine if we can for sure say pears is a safe food. Going into this scope, I’m remaining positive that she is going to have a clean scope. L has not had any major reactions or symptoms, so we are believing this is going to be a good news scope.
Food trials are hard. You get into a safe zone of no symptoms and want to just stay there because of fear of adding new foods and the symptoms return. Our goal is to try and add more foods this year. L has tried a couple foods but didn’t really make it past day 5 or 6, so her allergist confirmed we should just stick with one food trial at a time instead of trying to double up on foods. The sad news is a endoscopy has to be used each time to confirm or deny a safe food. Hopefully with research this year, there will be an easier way to check on the esophagus. Each time L has an endoscopy, she has to be put to asleep so you can imagine her anxiety about scope days.
We will let you know how the scope goes on January 12 and figure out which food we will trial next. L has almost lived on a prescription formula to keep her alive for a year. My husband mentioned to me tonight, he doesn’t know how she continues to drink the formula (usually 7 to 8 boxes a day). The formula does not have a great smell, but with her endurance and strength, she drinks to boxes.
I continue to say she is a such a strong and brave child!
The day has come where many kids all across the country will visit their neighbors to say “trick-or-treat” and get a sweet treat in return. Kids will be jumping, skipping, running, and walking with no worries in the world to see how many treats will fill their bucket.
There will be also be kids that want to skip or run to their neighbor’s houses but are scared of not being able to get a treat. These kids have food allergies. They are not being picky or selfish, they are just wanting to feel “normal” and enjoy an activity like other kids. L falls into this category. Ever since she was diagnosed earlier this year with eosinophilic esophagitis, she has had a hard time going around other kids because she feels like she is not “normal.” We are working through this issue. A couple of months ago, we were in Michaels Craft Store and saw a teal pumpkin. As soon as we got home, we had to google about the teal pumpkin project. L explains this project in her short video.
Isn’t this a great idea? All because a fellow allergy mom wanted her kids to enjoy Halloween. The Teal Pumpkin Project was inspired by a local awareness activity run by the Food Allergy Community of East Tennessee (FACET) and launched as a national campaign by FARE in 2014.
We are hoping to find lots of teal pumpkins during our trick-or-treating outing. We wish you all a wonderful, happy, and safe Halloween!
As many know, L suffers every day with eosinophilic esophagitits. She amazes us with her strength. Recently, she started her own YouTube Channel to raise awareness about this disease and to help others suffering with the disease.
This Halloween season, all children deserve to have a safe and happy trick-or-treating experience. Check out L’s video about the Teal Pumpkin Project!