As I sit here tonight just so heartbroken and want answers and see the pain in my daughter's eyes, the tears just flow. I cannot get the image out of my head, I can't quit thinking about it, and I just want answers. That's all I want is answers for my little girl.
So just what is freaking this mom out? My little girl almost 3 in a week keeps having these reoccuring epidsodes. I know we are going well on 5 months now with these happening, but they are not letting up and just getting more frequent and frequent. I want to call them stomach cramps, because I believe that is what they are just not sure. Throughout the day, she will hurry and run to something she can hold onto and just cling to that object such as a couch or table and then start shaking all over and her stomach sucks way in around her ribs and her face just gets this awful look on it. She will go through it about 2 minutes and then automatically be my happy girl again.
What is sad is she will not let us hug or comfort her through these. She wants to be left alone and not touched. Do you know how hard this breaks my heart. I am her mommy and want to take the pain away. We have been to the doctors and they are just not sure. We have no answers. At first they thought it was allergies and it could still be, but at this point I think it is beyond allergies unless we are not keeping something out of her diet we are not suppose to. We will know more about that with her allergy testing next week.
The doctors have sent us for 2 upper GI's and Lyndsee refuses to lay down and do the test. I cannot blame her. All those big machines and drinking that nasty stuff how can you get an almost 3 year old to do that? For the past two days the "episodes" were being more frequent so I took her back into the doctor yesterday. They sent us home with three containers filled with liquid for me to catch her next three bowel movements to put in each container. They are going to run some tests on it.
What is weird as well this week she is going back and forth from having almost black bowel movements to green bowel movements. I can't help to shake this feeling that something is going on? What can it be? You know how mommy instincts come out, well they are tugging at my heart big time right now.
Lyndsee is so strong you wouldn't believe. Because she is my happy going girl before the episode and immediately right after. She takes the pain and gets tears and then bounces right back. Is that not amazing? Yes she is more clingy than usual, but I will take that. I don't care. I am her mom and suppose to be her protector. I just wish she would let me comfort her through the pain more. It is hurting her dad and I so much to see her go through this pain :(. If anyone please has any answers or possible causes would you please respond to this post.
They are sending us to a pediatric gastronenterologist next Thursday. I am hoping he will have some kind of answers for us. I don't know if these stomach epidsodes would have any link to the possible neurofibromatosis diagnosis that we go for in Late November, but if you have any experience with that I would like to know as well. They cannot get us in for genetic testing at the University of South Florida until last of November :(. Of course that is freaking me out as well and I would love to know if she has it or not. It seems every few days I see new small cafe au lait marks popping up on her body but they are real small. I'm not sure if they will grow bigger, but I know that is how her other ones have started out and they just keep enlarging.
Please keep us in your prayers that we can get all this solved and get answers. I'm such a worry wart and this is causing so much craziness in my mind and has me so emotional. At times throughout the day, I'll just breakdown and cry. Lyndsee will say what's wrong mommy and Madisyn is always there to give me the biggest hug. I love my girls SO MUCH!
I am starting her on the candida diet the day after her birthday to see if this will have any help on her body. My best bud Nell is helping me go through the diet. I will definitely start out small as she is such a little girl, I do not want to overwhelm her body.
Thanks everyone if you have made it this far. I appreciate everyone!
Wow…that’s tough! Unfortunately I have no advice, but I will definitely be thinking and praying for you all!
Aurelia Williams says
I can’t imagine how hard that is for you to watch Jen and sorry I have no advice for you but I want you to know that you and Lyndsee are in my prayers. I hope that the pediatric gastronenterologist has some answers for you next week.
Heather @ Desperately Seeking Sanity says
I have no advice, but I will keep you all in my prayers… that I CAN do… 🙂
Shannon Smith says
Lyndsee and your family will be in my prayers. I went through something similar with my son. His was obvious from the start that it was constipation. It took sometime and research to figure out what was causing him to have it so bad. The answer for us was milk. It caused severe stomach cramps and then constipation so bad he would cry and cry and cry and his poor little face would become all contorted as he tried to ‘push’ it out.
The pediatrician prescribed him some fiber stuff that I was supposed to give him several times a day. And then there was long plan of getting him back on track. Which treated the problem, but I wanted to know why it was happening. I’m not a big meds and doctor person and prefer natural ways when possible.
When through my research, I finally got the idea it might be milk, I immediately took him off milk and within a week he was much better. I tried soymilk and he did ok with that. Cheese and other dairy products don’t seem to affect him much.
Even now, at the age of 6, if we let too much milk creep into his diet, the stomach cramps and constipation will become a problem again. I keep some Fletcher’s Children’s Laxative around the house too. On the rare occasion that it does rear it’s ugly head now, a couple of doses of that gets him back on track.
Other than doctor stuff, you don’t mention a whole lot of what you have tried and stuff. I’m wondering if you have tried some kind of food diary to see if there is a pattern.
Sorry, this has turned out long. My heart is just breaking for you. I remember all too well the feeling of helplessness as Andrew stood their, holding onto something, stiff as a board, as he tried to get through it. And even now he’ll call me into the bathroom with him to pray for him when it gets bad. For the most part we have it under control, but it’s still there if we ‘slack’.
Anyway, I’ll let go of your ear now. I hope it works out.
Thank you all for your prayers!
Thanks so much for telling your story. We initially thought it was the milk. For 3.5 weeks now she has been off all dairy, peanuts, citrus and shellfish foods.
We do go for her full allergy text this coming Friday so we may be missing an allergy, but my goodness not much my poor baby can eat now :(. I really hope it will be a simple allergy. That would make life so much less stressful of us trying to figure out why she is doing this.
I don’t think she is constipated as her bowel movements are real regular and pretty soft. We don’t see any hard bowel movements, but that’s not say there isn’t some bowel still stuck ya know?
Thanks again for coming by. I appreciate it.
Oh Jen I am so sorry. I can’t bear to watch or even think about it. Girl, you’re making me cry! ((Huggs)) for all the ladies in your home. You’ll be in my prayers.
Crunchy Domestic Goddess says
oh jen. i’m so sorry about this. i don’t have any advice, but i hope you can get some answers soon. you all will be in my thoughts.
Deb - Mom of 3 Girls says
Oh I am so sorry. I can’t imagine watching your child in pain over and over and not being able to help… I hope you can get some answers soon and I will keep you all in my thoughts and prayers.
I’ve had someone suggest to me that candida could be a cause of Abby’s behavioral problems – I’ll be curious to see how Lyndsee does on the diet and if it helps any… Good luck and I hope something will work to help take away her pain soon! Hugs…
casual friday everyday says
Hun, you know how badly this tears me up. I sure do hope you get some answers. Although I do strongly suspect your daughter has an overgrowth from all the antibiotics she was on this year I can’t help but worry it’s something else in addition to that, too. I sure hope it’s something easy they can take care of. I’m praying.
casual friday everyday says
Deb, the diet isn’t too difficult. If you want some advice from me on the topic just email me email@example.com — I’ve gone through the diet and am putting my son back on in after birthday parties this month.
Tishia Lee says
I don’t really have much in the advice department but I can pray for her!
Prayers coming your way that’s soo scary!
Oh Jen…you’re all in my prayers! (((HUGS)))
Poor baby and poor mom having to watch her go through this! The only thing about allergy tests is, they are notoriously unpredictable and especially when you’re already making changes in her diet, they’re less likely to show up.
I doubt she’s constipated if her movements are soft and comfortable to pass.
I hope you get some answers soon!
also on a lighter note, I tagged you with this meme:
Sharon@New Urban Mom says
Ho Jen – I wish I had some information for you…at least you’ve got appointments lined up with specialists next week and you’ve got specimen samples for them to examine before hand.
I know as a mom we can drive ourselves crazy with worry over our kids…I think we’ve all been there. Sending good thoughts and my prayers up for a speedy recovery for your baby girl
I am so sorry for what your little girl is going through. It must be so hard for her especially since she doesn’t understand what’s going on. I hope the doctors figure it out soon! You’re in my prayers.
Stacey@Look, Mom, Look! says
As a child, I was always being treated for stomach problems. From cramping to constipation, you name it. Now my 4 year old also has stomach issues and I know that it can be so frustrating! I wish you the best of luck and I will definitely check back with your blog. I just hopped over here for the first time from Wordless Wednesday. I love the pic by the way!
All the best wishes,
Acai Berry Detox says
Wow that would freak me out too! I hope you found a solution, it sounds like Shannon had a really good idea of what it might be. I’m praying for you!
Get well soon Lyndsee!!