As I sit here tonight just so heartbroken and want answers and see the pain in my daughter's eyes, the tears just flow. I cannot get the image out of my head, I can't quit thinking about it, and I just want answers. That's all I want is answers for my little girl.
So just what is freaking this mom out? My little girl almost 3 in a week keeps having these reoccuring epidsodes. I know we are going well on 5 months now with these happening, but they are not letting up and just getting more frequent and frequent. I want to call them stomach cramps, because I believe that is what they are just not sure. Throughout the day, she will hurry and run to something she can hold onto and just cling to that object such as a couch or table and then start shaking all over and her stomach sucks way in around her ribs and her face just gets this awful look on it. She will go through it about 2 minutes and then automatically be my happy girl again.
What is sad is she will not let us hug or comfort her through these. She wants to be left alone and not touched. Do you know how hard this breaks my heart. I am her mommy and want to take the pain away. We have been to the doctors and they are just not sure. We have no answers. At first they thought it was allergies and it could still be, but at this point I think it is beyond allergies unless we are not keeping something out of her diet we are not suppose to. We will know more about that with her allergy testing next week.
The doctors have sent us for 2 upper GI's and Lyndsee refuses to lay down and do the test. I cannot blame her. All those big machines and drinking that nasty stuff how can you get an almost 3 year old to do that? For the past two days the "episodes" were being more frequent so I took her back into the doctor yesterday. They sent us home with three containers filled with liquid for me to catch her next three bowel movements to put in each container. They are going to run some tests on it.
What is weird as well this week she is going back and forth from having almost black bowel movements to green bowel movements. I can't help to shake this feeling that something is going on? What can it be? You know how mommy instincts come out, well they are tugging at my heart big time right now.
Lyndsee is so strong you wouldn't believe. Because she is my happy going girl before the episode and immediately right after. She takes the pain and gets tears and then bounces right back. Is that not amazing? Yes she is more clingy than usual, but I will take that. I don't care. I am her mom and suppose to be her protector. I just wish she would let me comfort her through the pain more. It is hurting her dad and I so much to see her go through this pain :(. If anyone please has any answers or possible causes would you please respond to this post.
They are sending us to a pediatric gastronenterologist next Thursday. I am hoping he will have some kind of answers for us. I don't know if these stomach epidsodes would have any link to the possible neurofibromatosis diagnosis that we go for in Late November, but if you have any experience with that I would like to know as well. They cannot get us in for genetic testing at the University of South Florida until last of November :(. Of course that is freaking me out as well and I would love to know if she has it or not. It seems every few days I see new small cafe au lait marks popping up on her body but they are real small. I'm not sure if they will grow bigger, but I know that is how her other ones have started out and they just keep enlarging.
Please keep us in your prayers that we can get all this solved and get answers. I'm such a worry wart and this is causing so much craziness in my mind and has me so emotional. At times throughout the day, I'll just breakdown and cry. Lyndsee will say what's wrong mommy and Madisyn is always there to give me the biggest hug. I love my girls SO MUCH!
I am starting her on the candida diet the day after her birthday to see if this will have any help on her body. My best bud Nell is helping me go through the diet. I will definitely start out small as she is such a little girl, I do not want to overwhelm her body.
Thanks everyone if you have made it this far. I appreciate everyone!