We have great news…. #EosinophilicEsophagitis

Did you hear that? That was the entire family shouting with joy. Why are we shouting? You will need to watch our latest vlog as we share big news in L’s eosinophilic esophagitis journey!

Never a Dull Moment….

Life is busy right now. Being a full-time employee outside of the home, a full-time college student, and of course being a wife to my handsome husband and a mother to my two awesome daughters, it can make for a busy schedule. Throw in multiple doctor appointments for my daughter L’s health journey of eosinophilic esophagitis, and now more doctor appointments for M’s journey to correct her flat feet. Since both girls are going through different medical journey’s, I thought I would give updates to see if we can help other families.

A little back story on M. When she was three years old, I took her to the doctor to have her feet checked because she walked with her feet going inwards. The doctor assured me that her feet would correct themselves over the years to not stress about how she is walking at three years old. Parents, trust your instincts.

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This was the wrong advice and now fast forward 10 years, we are dealing with a foot grown wrong.

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The last 18 months, we have been seeing local orthopedics and finally decided to transfer care to a children’s hospital. This was a good decision. When we arrived with M’s soft orthotics, the pediatric orthopedic asked why she was wearing them? In his words, those will never work for M’s foot. He decided to put M in a cast for 4 weeks and is having custom braces made for when she has the cast removed.

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Her foot now also has a cyst on top of the big toe bone.

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We are hoping the cast will help take the inflammation away and the cyst will go away. If the cast and braces do not do what they need to do, M will face surgery in the future.

As a family, we are being very optimistic that the cast and braces will work. Time will tell. Stay tuned and we will keep you posted!

It’s Hard…..

To watch your daughter not able to eat.

To fail food trials, potatoes and apples.

To cry when being taken back for surgery for the 4th time in 2016.

To grab her throat in pain.

To have to drink a prescription formula to stay alive.

Friends and family, it has been a hard month. We serve a great Lord who gives us strength and encouragement every single day. When we started on this eosinophilic esophagitis journey, the family wasn’t sure what to expect. It has been heartbreak after heartbreak, but L has been so strong through the entire journey. I can’t even imagine what goes through her mind. When your daughter tells you she is not ready to go to heaven, you can imagine the tears that streamed down my face. It shows what the disease does to you mentally. It was my job as her mother to assure her that she has a great medical team and we are going to continue everyday to pray for a CURE! When a reaction happens to your throat, it becomes traumatic and forever stays in your mind.

L had to have an emergency scope this past week. Since we have been home, I have been trying to make her as calm as I can by filling our house with happiness and much prayer. This past weekend, we bought a himalayan salt lamp for her room, a kid’s calming stick, and more essential oils for her diffuser. Our hopes this will help with L cope through this very traumatic journey.

In a magical world, a wand would be waved and she would be healed. As a family, we feel she will be healed by our almighty Physician (Our Lord), so the Lord can use her amazing testimony of healing to share to others.

Next week, we meet with a new allergist to ensure we are covering all our bases with L’s regular food allergies and her EoE diagnosis. We will walk away from this appointment with a new game plan and get our L eating food once again. It is hard to remain positive and not throw your hands up and cry. But honestly, what would that fix? L feeds off of our emotions, so we must remain positive and fill our world with great happiness. This means family puzzle time, family craft time, animal discussions, car rides, and the list goes on.

We are not giving up. We are reaching farther. God is good!

It was an event-filled Mother’s Day weekend!

Jen and Girls

 

It was quite the weekend at the Spink household. We are moving and shaking things up. It is all good news though in which we give praises to our Lord!

After deciding to go back to college so I could take another direction in life, I never thought I would be on the the roller coaster with medical issues between all family members. We have the medical issues behind us though and I am now a graduate with a Business Administration and Logistics Management degrees!

Jen Graduation

 

My mom and dad were proud and it meant so much to me that they could attend this graduation. I have been praying every day that God will guide and direct me after graduation. It is time for a career and not just a job. My skill set is quite broad and my prayer was that a job would come across the table that would allow me to use my skills. I don’t want to just show up for work each day, I want to grow with an organization. As I walked backstage at graduation, my cellphone rang in my daughter’s hand. We weren’t allowed to have our cellphones backstage, so I left it with M. My step-daughter and M walked backstage to find me because they thought I would want to take this important phone call. You see it was an organization that over the past couple of weeks were bringing me into their office for interviews. The phone call was to alert me that I was the candidate of their choice. The timing couldn’t have been better, as the time had come for me to walk across stage to accept my degrees. God is so good!

It amazes me all the time on how God works. Our timing is not his timing. We have to lean on his understanding when it comes to time. The future is bright. My feet are firmly planted to the floor to start my “career.”

Celebration continued on Sunday for Mother’s Day. Growing up, my main goal was to be a mom. God blessed me with two beautiful and bright girls. See that picture at the top of this post? It is now my phone screensaver because it brings an immediate smile to my face every time I catch a glimpse of the picture. My girls are growing into young ladies but they still very much need their mommy. For this, I am happy. M surprised me with a DIY project. She placed the project on my dresser. My heart. She knows the way to my heart with her DIY projects!

Mother's Day Present

 

Monday was my birthday. Graduation, Mother’s Day, new job and my birthday all in one weekend was not my plan. It was God’s plan. His plan is always better than mine. I will remember this BIG weekend forever. The love shared by family,  close friends, and precious co-workers will stay close to my heart.

Here’s to new beginnings! I’m smiling!

 

Sissy Shares a Precious Easter Message!

As most of you know, we are homeschooling the girls this year. It is going so well. One of the best parts is including our faith with their studies.

My heart is filled with so much joy when I see the girls writing and talking about their love for our Lord. I walked in from work and my husband handed me a piece of paper. He says three words, “prepare to cry.” He assured me it would be happy tears. My hand took the paper and my eyes read each word on the paper very carefully. The tears flowed.

Easter Story

My heart. Oh how I love her! Sissy has always been a great writer. She writes from her heart. Of course, the writing included animals, her precious animals. “…everyone is different in our own way.” Powerful.

Homeschooling was one of the best things we could have done for our precious L. No more timed tests, no more feeling shamed because she couldn’t finish an assignment as fast as others, and freedom to learn how she wants to learn. Freedom to learn about our wonderful Lord!

God is good!

 

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