Cincinnati Trip – Denied!

Can you imagine our heartbreak? L and I are supposed to be at Cincinnati Children’s right now. I received a phone call last Wednesday that even though we received prior approval and insurance approved L to go to Cincinnati, they are now denying.

Even though we received the discouraging news and both of us shed tears, we are trying to stay positive and keep the faith. Plans change for a reason! My husband and M couldn’t go since it was M’s last week of school and she had exams. I wonder if God didn’t want L and I driving by ourselves. I’m not sure but there is a reason for everything.

We were not promised an easy life, but God did promise He would never forsake us. Our family has been through a lot but we continue to believe and keep the faith. God has a plan. L had a full week of evaluations scheduled to better treat her Eosinophilic Esophagitis. This amazing young lady has lived off of prescription formula Neocate Splash for 2.5 years. She only has one safe food, pears! Could you imagine?

There is no doubt, L is the strongest person I know as food is all around her, but she keeps her head held high. I’m currently fighting insurance in hopes we can reschedule the trip. Friends, please never stop fighting for your loved ones. It’s sad that we have to fight for our family’s healthcare but I will not stop advocating for the best care for our girl.

L, you are my hero! I love you to the moon and back. We need a cure!

Costco Has Paleo Pancake Mix (Non-GMO)

Food ingredients is a hot topic in our household. L cannot eat food and then I have a dairy and gluten allergies. Ever since L was diagnosed with eosinophilic esophagitis, we all changed the way we eat. We try very hard to only eat all natural foods. I was so excited to find this paleo pancake mix at Costco.

The best part? You only have to add water! I did add fresh blueberries because I love blueberry pancakes. This mix is non-GMO, no added sugar, and of course gluten, dairy, and grain free!

My husband is my worst critic when it comes to new foods. As I flipped the pancakes into his plate, I silently was hoping he would enjoy them.

May I get a drumroll? My husband loved them and asked for seconds. It was M’s turn to try them and she thought they were delicious. Finally, it was my turn. Friends, they were not dry. Score! It’s hard sometimes with gluten-free recipes. I enjoyed every bite and I believe the fresh blueberries made the pancakes even more delicious.

I highly recommend putting this good for you food in your tummy.

By the way – this is not a sponsored post.

 

Easy Dairy Free and Gluten Free Strawberry Cobbler

The morning started by my oldest daughter M, asking me what I was going to do with all the frozen strawberries in the freezer. She is our family organizer and the strawberries were cramping her style while she was organizing the fridge and freezer compartments. I decided to go to google and search for an easy cobbler recipe. I found this recipe on The Spruce website. The reason this recipe caught my eye is that it used all real ingredients and I would be able to substitute my dairy free products for all the milk products. As many knows, I was diagnosed with a dairy allergy last year along with previously being diagnosed with a gluten intolerance. Doesn’t this picture display deliciousness?

Strawberry Cobbler

You are going to love how this recipe is so easy!

Ingredients:

1 1/2 cups of strawberries

For the Cobbler Batter:
1 cup organic cane sugar
1 cup gluten-free coconut flour
1 3/4 teaspoons gluten-free baking powder
1/2 teaspoon salt
1 large egg
6 tablespoons melted earth balance dairy free butter
2 tablespoons coconut milk
1/2 teaspoon vanilla

For the Topping:
1 tablespoon organic cane sugar
1/4 teaspoon ground cinnamon for topping

Directions:

gluten and dairy free strawberry cobbler

  1. Preheat oven to 350 degrees.
  2. Spray an 11×14 glass pyrex dish with olive oil or your spray of choice. Pour the strawberries into the baking dish.
  3. In a mixing bowl, mix the flour, sugar, baking powder, and salt until thoroughly combined.
  4. Add remaining ingredients, egg, melted earth balance butter (keep 2 tablespoons to pour over batter), coconut milk and vanilla. Beat until well blended. I used a fork to blend.
  5. Evenly spread the batter mixture over the strawberries.
  6. Pour the remaining melted butter over the batter and top with sugar and cinnamon.
  7. Bake for 35 to 40 minutes. The batter will be golden brown.
  8. Enjoy!

Gluten and Dairy Free Strawberry Cobbler

We are changing treatment plans for L’s Eosinophilic Esophagitis

L - July 2017After lots of prayers and discussions, we have decided to change treatment plans for our L. As you know, her original diagnosis came in early 2016. We had never heard of the words eosinophilic esophagitis. The only thing we knew was our daughter was really sick and losing weight very fast which led to her being near failure to thrive. Fast forward 17 months later, and L has gained 31 pounds. Praise the Lord! She looks so healthy. She has been on an elemental formula diet during this entire time and drinks approximately 10 little boxes of Neocate Splash. The Neocate is providing the nutrition she needs but L is really wanting to eat real food. She has managed to only gain two safe foods during the last year and a half, pears and sweet potatoes. Unfortunately, L has so many regular food and environmental allergies, that we are not making any progress with food trials. After meeting with her team last week at the Children’s hospital, they all agreed it was time to change routes.

We have decided to start L on a daily steroid slurry routine.  She started yesterday and will be taking the slurry twice a day. We have to make the slurry each time with pulmicort respules and packets of stevia sugar. This will coat her esophagus in hopes that she can pass more food trials. I did not want to go the steroid route, but L’s mental health is very important to us. Can you imagine not eating food when everyone around you can eat food? Our society revolves around food so much. She deserves this chance. The pros outweigh the cons of steroids.

She will be introducing a new food in two weeks, then another food two weeks later, and then another food two weeks after that. After that time, she will be scheduled for a scope day at the Children’s Hospital to see if the steroids are keeping the eosinophils away. We are praying this steroid will be the answer for our L. We will never quit praying for a cure each night.

L will continue to drink her prescription formula, Neocate, but we are hoping she will be able to reduce her formula intake each day. As always, we are here to share L’s journey in hopes we can help other families. Please stay tuned for progress updates.

Gluten-Free and Dairy-Free No Bake Energy Bites

Ever since L’s diagnosis, we say no to processed foods. We enjoy knowing what is in our foods that we eat. We are all healthier and living a more natural lifestyle. Each week, I love making the no bake energy bites for a quick snack during the day. They are delicious and so easy to make.

No Bake Energy Bites

Ingredients

1 cup 100% dry oats (gluten allergy or intolerance ensure it is gluten free oats)
1/2 cup peanut butter
1/3 cup honey
1/2 cup ground flaxseed

Directions

– Add all ingredients to a bowl and mix well. Put the bowl in the fridge for at least 30 minutes.
– After time in the fridge, take a spoon and scoop enough to make a ball in your hand.
– I was able to make 20 balls.
– Store in the fridge in an airtight container.

Enjoy. Your entire family will enjoy these bites. You will be making them each week!

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